ALS Society of Manitoba
Le Societe Manitobaine de la SLA
ALS stands for Amyotrophic Lateral Sclerosis and is sometimes more commonly known as Lou Gehrig’s disease. It is a rapidly progressive and fatal neuromuscular disease that is characterized by degeneration of a select group of nerve cells and pathways (motor neurons) in the brain and spinal cord. This loss of motor neurons leads to progressive paralysis of the voluntary muscles. The heart is not a voluntary muscle, and therefore it remains unaffected by the disease. However, since breathing is controlled voluntarily by the chest muscles, death usually occurs when the chest muscles are no longer able to help the lungs achieve adequate oxygenation. Generally there is little impairment of the brain, sight, touch, hearing, or smell.
ALS/MND is not contagious, but it is fatal. For the most part, the battle is short, with 80% of people losing their lives within two to five years of diagnosis. While between 10 and 20% of people may live ten years or more, sadly others end up lasting only a few months. Research is being conducted in areas relating to genetic predispositions, viral or infectious agents, environmental toxins, and immunological changes.
For some people, the muscles for speaking, swallowing or breathing are the first to be affected. This is known as Bulbar ALS. The term “bulbar” refers to the motor neurons located in the bulb region of the brain stem, that control the muscles used for chewing, swallowing, and speaking. ALS/MND symptoms, and the order in which they occur, vary from one person to another. Each person’s journey with ALS/MND is unique and can vary significantly from person to person.
In 85% of cases ALS/MND effects the lower portion of the spinal cord first. In these cases muscle weakness, cramps and weakened reflexes effects the muscles in the arms and legs as the first signs of ALS/MND. The rate of muscle loss can vary significantly from person to person, with some patients having long periods with very slow degeneration.
Long Term & Continuing Care Association of Manitoba
The Long Term & Continuing Care Association of Manitoba is a membership based not-for-profit organization that has been representing health care providers since 1959. We are incorporated under Companies Act of Manitoba and have recognized bylaws. Our volunteer member-elected Board of Directors provides direction to the overall governance of the Association while full-time professional staff manage the daily administrative duties. As an organization we continue to foster long term care leadership through membership growth, development and support. Our membership represents more than 4,500 long term and continuing care beds/suites (we represent non-profit (49%), and private (51%) retirement, independent living, as well as supportive housing and personal care home residences), approximately 5000 employees,spanning all five health authorities across Manitoba.
LTCAM Mission Statement
We advance the delivery of quality long term and continuing care services and resources, through advocacy, education and networking for our members and those they serve.
Objectives of the Association are to:
- advocate on and respond effectively to industry issues such as relevant legislation, policy and funding
- actively support the provision of the best possible care and services
- enhance the profile of its members as providers of service excellence for seniors in Manitoba
- educate the public and serve as the voice on behalf of the seniors' care and services sector
- provide educational opportunities for members
- facilitate timely communications and networking opportunities
- liaise with like-minded Associations across Canada.
Alzheimer Society of Canada
Behind every person with Alzheimer's disease and other dementias, there are hundreds of people dedicated to helping. The Alzheimer Society is the leading not-for-profit health organization working nationwide to improve the quality of life for Canadians affected by Alzheimer's disease and other dementias and advance the search for the cause and cure. Active in communities right across Canada, the Society has programs and services near you.
Since 1978, we've been dedicated to providing help for people with Alzheimer's disease and other dementias and their caregivers. That help comes in many ways.View Website
The Arthritis Society has been setting lives in motion for over 65 years. Dedicated to a vision of living well while creating a future without arthritis, The Society is Canada’s principal health charity providing education, programs and support to the over 4.6 million Canadians living with arthritis, including more than 200,000 Manitobans. Since its founding in 1948, The Society has been the largest non-government funder of arthritis research in Canada, investing over $195 million in projects that have led to breakthroughs in the diagnosis, treatment and care of people with arthritis. The Arthritis Society is accredited under Imagine Canada’s Standards Program.View Website
SMD - Society for Manitobans with Disabilities
The SMD family includes a head office in Winnipeg as well as six regional offices throughout Manitoba that provide services and support to people with disabilities in rural areas. SMD is also affiliated with national organizations such as Easter Seals Canada.View Website
Canadian Cancer Society
This year marks the 75th Anniversary of the Canadian Cancer Society. It is an occasion to look back on the Society’s successes over 75 years. We have so much to be proud of but there is much more to be done. To find out more about our accomplishments and our history, visit 75th Anniversary Impact moments.View Website
Reaching E-Quality Employment Services (REES) is an established, community-based employment service with a consistent track record of assisting people with physical disabilities or health conditions to gain employment, since 1989
Special Olympics Manitoba
Special Olympics Manitoba offers quality sport training programs and competition to athletes with an intellectual disability from the ages of 2 years and up.
The fundamental difference that sets Special Olympics competitions apart from generic sport, is that athletes are grouped according to their skill level. This provides the opportunity to participate, compete and win at every level.View Website
The ALS Society of Canada, founded in 1977, is the only national voluntary health organization dedicated solely to the fight against ALS and support for those with ALS. ALS Canada is the leading not-for-profit organization working nationwide to fund ALS research and, with the Provincial ALS Societies, we all work to improve the quality of life for Canadians affected by ALS.View Website
CARP - Canadian Association of Retired Persons
CARP is a national, non-partisan, non-profit organization committed to a ‘New Vision of Aging for Canada’ promoting social change that will bring financial security, equitable access to health care and freedom from discrimination. Our mandate is to promote and protect the interests, rights and quality of life for Canadians as we age.View Websites
Cystic Fibrosis Canada
Cystic Fibrosis Canada is one of the world’s top three charitable organizations committed to finding a cure for cystic fibrosis. Cystic Fibrosis Canada invests more funding in life-saving cystic fibrosis research and care than any other non-government agency in Canada. In 2012/2013, we will invest more than $7.5 million in innovative research and clinical care, funding 57 research projects and 47 fellows and students.View Website
Canadian Lung Association
For over 100 years, The Canadian Lung Association has been dedicated to its mission of promoting and improving lung health for all Canadians. A non-profit and volunteer-based health charity, The Lung Association depends on donations from the public to support lung health research, education, prevention and advocacy.View Website
Canadian Paraplegic Association
CPA (Manitoba) Inc. is a non-profit organization representing persons with spinal cord injuries (SCI) in Manitoba. Accountable to a membership comprised of persons living with these disabilities, their families and supporters, CPA employs professional staff, uses committed volunteers and encourages peer-linkages to achieve its mission.View Website
Heart and Stroke Foundation
The Heart and Stroke Foundation is one of Canada’s largest and most effective health charities. Over the last 60 years we have invested more than $1.3 billion in heart and stroke research, making us the largest contributor in Canada after the federal government. In that time, the death rate from heart disease and stroke has declined by more than 75 per cent.View Website
Huntington's Society of Canada
The Huntington Society of Canada aspires to a world free from Huntington disease. The Society maximizes the quality of life of people living with HD by: Delivering services; Enabling others to understand the disease and; Furthering research to slow and to prevent Huntington diseaseView Website
MS Society of Canada
The MS Society provides services to people with multiple sclerosis and their families and funds research to find the cause and cure for this disease. We have a membership of 28,000 and are the only national voluntary organization in Canada that supports both MS research and services.View Website
Osteoporosis Canada provides medically accurate information to patients, health care professionals and the public. Services to individuals with osteoporosis and the public include free publications, a bilingual toll-free information line, educational programs and referrals to self-help groups and community resources, as well as this web site.View Website
Parkinsons Society Canada
Parkinson Society Canada is the national voice of Canadians living with Parkinson’s, a neurodegenerative disease. Through regional partners and 240 chapters and support groups, we provide education, support, and advocacy on behalf of over 100,000 Canadians living with Parkinson’s every day. Funding innovative research helps expand knowledge on prevention, diagnosis and treatment of Parkinson’s and will ultimately lead to a cure.View Website
Spina Bifida Association of Canada
Spina Bifida & Hydrocephalus Canada is a federation of 13 organizations working collectively on behalf of people with Spina Bifida and/or Hydrocephalus.View Website
Rehab Centre for Children
The Rehabilitation Centre for Children (RCC) provides services to children with physical and developmental challenges. Children from birth to eighteen (twenty-one if still in school) are eligible for the services of the Centre.View Website